Monday 21 December 2009

UK Government Response to the LDN Now 13,000 Signature NHS Low Dose Naltrexone Trial Petition to Gordon Brown, UK Prime Minister, Gordon Brown

Link - http://www.number10.gov.uk/Page21825

Text -

All drugs need to be thoroughly tested to make sure they are safe enough to be made available to patients. Most research of this kind is done by the pharmaceutical industry. The Government is aware that occasionally there will be few or no commercial incentives for companies to fund clinical trials.

The Department of Health’s National Institute for Health Research (NIHR) supports the research most likely to bring benefits to patients and to the NHS. High quality proposals for support into any aspect of human health are always welcome. The NIHR Health Technology Assessment programme in particular is keen to receive suggestions for research topics in areas of market failure. These can be sent through the open access form at: www.hta.ac.uk/suggest/index.shtml.

To date, no application has been received regarding low dose naltrexone. Any application would be considered on its merits.

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Author's Note - There is reason to suspect the sbove is not factually correct and that one application has been made. More news to follow later.

Saturday 12 December 2009

Audit Scotland Warns of Pressures on the NHS Scotland Budget - Low Dose Naltreonxe (LDN) Savings Cannot be Ignored

And so it goes on, yet another reason why the 4000%+ higher price of currently used auto-immune and cancer treatments vs Low Dose Naltrexone (LDN) cannot be ignored any longer. The potential billions of pounds in savings here make the millions required for LDN clinical trials a sound investment for the NHS in Scotland and the UK as a whole.

http://bit.ly/SPLDNcost

UK Telegraph - NICE Propose to Restrict Key IBD Treatments to One Year on Grounds of Cost

Yet more justification, if any were needed that the UK NHS needs to seriously look into widespread use of Low Dose Naltrexone (LDN) as a low cost treatment for Crohn's Disease, Ulcerative Colitis and the any other conditions it has been used successfully to reat including other auto-immune disease, cancers, autism and HIV/AIDs.

At £12,500 per patient per year for Infliximab versus £300 per year for Low Dose Naltrexone, it is the proverbial 'no-brainer' for the NHS to do whatever it takes to convince consultants and GPs that LDN is a suitable drug choice for IBD.

The government and public bodies need to cease dithering on this and take action now so that IBD sufferers need not suffer unnecessarily.

http://bit.ly/NICEIBD

Tuesday 8 December 2009

Round-Up of LDN Now Low Dose Naltrexone Campaign at The Scottish Parliament Public Petitions Committee

Original video of the meeting here (Click link 01/12/2009 and fast forward 39 minutes to LDN Now meeting) -

http://bit.ly/SPLDNvid1

youtube version -

http://bit.ly/SPLDNvid

Interview segment from Holyrood TV Highlights programme (Click link 03/12/2009 and fast forward to 16:00 minutes) -

http://bit.ly/SPLDNint

Full transcript of the meeting -

http://bit.ly/SPLDNmin

Saturday 5 December 2009

Minute from the LDN Now Scotland Scottish Parliament meeting on Low Dose Naltrexone (LDN) Availability on the NHS in Scotland

The first minute of the meeting is available here - http://bit.ly/SPLDNmin1

Some key quotes (Paraphrased)

Robin Harper, (Scottish Green Party) - Basis for clinical trial exists with current LDN evidence. Suggest GPs gather clinical data on LDN use.

Anne McLaughlin (SNP) - Committee needs to write to charities to ask if they will help fund trials.

Nigel Don (SNP) - LDN is a drug that treats the immune system drug and clinical trials are required for all conditions it can be shown to treat.

John Wilson (SNP) - Health charities should be encouraged to ensure they are spending money on researching all options for their patients, including LDN.

Frank McAveety (Labour) - The issue that the private sector will not fund trials due to no profit motive is clear and is noted.

Low Dose Naltrexone (LDN) Database - Update

If you are using, or have used Low Dose Naltrexone (LDN), please take 2 minutes to enter or update your experience of the drug on the LDN Database web site - LDN Database .com

Thanks to John Donnelly of LDN Now Ireland for this great resource, http://ldnnow.com

Wednesday 2 December 2009

Low Dose Naltrexone (LDN) at The Scottish Parliament

LDN had what could be it's most public hearing yet at possibly the hightest political level too, at The Scottish Parliament Public Petitions Committee.
Video is available here -

http://bit.ly/SPLDNvid1

Click the 01/12/2009 link and the LDN petition starts at around 40 minutes in.


Hopefully more to follow on the outcome of this committee's investigations into LDN and the NHS in Scotland.