LDN A Personal Experience - Linda Elsegood of The LDN Research Trust, European LDN Conference 2009, Glasgow.

LDN A Personal Experience - Linda Elsegood of The LDN Research Trust, European LDN Conference 2009, Glasgow.

Linda has had MS for 20 yrs. Has been on LDN 5.5 yrs.

Today she appears totally symptom free.

Before LDN she has very limited mobility, cognitive issues in communicating and severe muscular problems.

In December 2003 she started taking LDN

She saw a dramatic improvement in 3 weeks - fatigue, sight, bladder - all improved.

Subsequently Linda set-up The LDN Research Trust (LDNRC) as a charity.

All work is voluntary work, just the running costs are paid from donations.

So far they have raised £22K towards a clinical trial in the UK.

LDNRC's aim - Get LDN on the UK NHS for everyone.

There are 4200+ registered LDN users with the LDNRC.

3000 are in the UK

90% have MS, others have Crohn's, ME, Parkinson's, Cancer and various other conditions.

Citizens of the US and other countries are welcome to register

Linda's current condition - She finds that getting an infection or virus brings on her MS symptoms (NOTE - Some people say they don't get infections or viruses at all while on LDN). But she finds the symptoms subside once the infection or virus is gone.

Linda thanked the following two individuals in particular for her recovery with LDN -

Dr Bob Lawrence - Who introduced LDN to UK

Dr Tom Gilhooly - For his efforts to bring about a clinical trial in the UK.

Further reading :

http://ldnresearchtrust.org

http://ldnnow.co.uk

http://essentialhealthclinc.com

Low Dose Naltrexone (LDN) on the NHS

Low Dose Naltrexone (LDN) on the NHS

Surprisingly enough, this blog is aimed at helping to get Low Dose Naltrexone (LDN) available via prescription in the United Kingdom's National Health Service (NHS).

wikipedia has a short page on LDN (Surprisingly un-informative, the lowdosenaltrexone.org link above is more useful).

The LDN Research Trust is a UK charity which aims to increase awareness of LDN and it's uses and to raise funds for clinical trials to provide evidence of it's efficacy in treating auto-immune diseases and other conditions.

Dr Tom Gilhooly and his partner pharmacy, Dicksons's has been instrumental in publicising LDN in Scotland the UK generally via his clinic in Rutherglen, Glasgow.

Dr Gilhooly organised an EU conference on LDN in Glasgow which has just been held.

The next one will also be held in Glasgow in 2010, and will be over 2 days, 1 for clinicians and researchers and one open the public also.

I attended this conference and will be providing some notes on the content of the presentations given at it in this blog in subsequent postings.